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PCCSF Sponsors MDA Muscle Walk

Neuromuscular diseases affect the nerves that control voluntary muscles such as the ones found in the arms and legs. As the nerves deteriorate or completely stop functioning, the muscles weaken and waste away. Symptoms include:

  • Muscle weakness, which can cause twitching, cramps, aches and pains
  • Muscle loss
  • Movement issues
  • Balance problems
  • Trouble swallowing or breathing
  • Droopy eyelids
  • Double vision

As specialists in the treatment of neuromuscular diseases, we know the hardships patients and their families face day in and day out. Because of this, it’s important for us to lend our support to organizations that are working relentlessly to assist them, and are conducting research to find a cure. Such organization is the Muscular Dystrophy Association.

MDA’s mission is to create more hope and answers for families living with muscular dystrophy and related diseases that take away physical strength and mobility. This is done by finding research breakthroughs across diseases, caring for kids and adults from day one, and empowering families with services and support in hometowns across America.

MDA hosts annual Muscle Walks to empower individuals across America, and raise critical awareness and funds. We’re happy to share our sponsorship of the MDA Muscle Walk Hollywood-Miami taking place Saturday, October 28, at Charnow Park in Hollywood Beach.

We hope you’ll join us during this life-changing experience that brings together families, friends, neighbors and local businesses to celebrate the strength of MDA families and transform hope into answers.

To register for the walk or donate to the cause, please visit MDA Muscle Walk.

Posted by lavandosky

Baby Safety Month: Strap in for Safety

Did you know that every day approximately 8,000 children are taken to the emergency room at hospitals across the U.S. to be treated for fall-related injuries?

Sponsored by the Juvenile Products Manufacturers Association, September is Baby Safety Month and it’s a time meant to educate parents and caregivers on different topics to keep our children safe. This year’s theme is Strap in for Safety and JPMA is offering tips on how to properly use straps on all juvenile products in the car, on the go, at home, and during mealtime.

  • When traveling with your little one in the car, straps should never allow any slack or push the child into an unnatural position.
  • On the go, parents should always remember to secure their baby with stroller straps – even during short trips.
  • From bouncers and swings to infant seats and changing tables, parents should consider using a three- or five-point harness to keep babies secure.
  • Mealtime can also pose risks if parents fail to properly strap in their child. To avoid injury, it’s important to securely fasten the straps so the child has no wiggle room.

For more tips like these, and to learn more about Baby Safety Month, visit Baby Safety Zone.

Posted by lavandosky

Patient Success Story: Naples Baby Survives Life-Threatening Immune Disorder

Pediatric Critical Care of South Florida recently treated a patient suffering from an underlying immune deficiency known as x-linked hyper IgM syndrome CD40L, a condition that affects the immune system and occurs almost exclusively in males. The life-threatening diagnosis was discovered when the patient was just three months old.

The patient spent two months under PCCSF’s care and required around the clock, bedside critical care management. Today, the patient is 11 months old and is back home in Naples with his family where he awaits a bone marrow transplant from his big sister, which is scheduled for next summer.

Read about the care the patient received while at PCCSF, how he’s doing today, and how you can donate to the family’s GoFundMe page in their interview with Naples Daily News:

Posted by lavandosky

Tips For A Healthy Back to School

The start of the 2017-2018 school year is right around the corner. After three months of summer vacation, most families need help transitioning their children to their back-to-school routines. Below are some tips to make sure your child kicks off the new school year on a healthy note!

  • Besides visiting your child’s pediatrician, back-to-school season is also a good time for setting other doctor’s appointments, including the dentist, optometrist, or ophthalmologist
  • Make sure that your child’s school is aware of any medical conditions that your child may have, including allergies, attention deficit hyperactivity disorder (ADHD), or vision problems. Make arrangements for the school to administer any medications that they may need during class
  • Healthy eating is crucial for a successful school year. Make sure that your child’s eating habits are back-on-track before the new school year starts by reintroducing healthier meals and making them aware of the benefits of nutritious options so they can start making better choices on their own
  • As the new school year approaches, it is imperative to get kids back to a regular sleep schedule, check with your pediatrician to see how much sleep your child should be getting according to their age. Most kids need about two weeks to become accustomed to a new sleep routine
  • Anxiety can be a problem, especially if children are heading to a new school with new classmates. Encourage your kids to discuss any anxieties they may be experiencing
  • Computer screens keep children’s minds stimulated longer than intended, start limiting your child’s play time in front of computers, cell phones, and tablets as back-to-school season approaches
  • Make regular physical activity part of your child’s back-to-school routine. Exercise supports overall well-being, a healthier immune system, and helps kids stay alert and focused when they get back to class
  • Go a step further by encouraging your child to sign-up for a sport they enjoy. Participating in team sports has lots of benefits, including physical and mental health, stress reduction, and an increase in self-confidence. Check if your child’s school requires a sports physical and schedule it before the school year starts
  • Make sure that your child’s backpack isn’t hurting their back. Choose a sturdy backpack with good built-in support and thick padded shoulder straps. Teach your child how to spread the weight of the bag evenly
Posted by lavandosky

Tips for a Happy and Healthy Summer

Summertime is here, which means kids are free from routines, homework and rules. While it’s important they enjoy their time off, too much freedom can lead to unhealthy habits. Below are tips to help your child have both a happy and healthy summer.

Nutrition and Physical Fitness – The summer months are not a time for your child to slack off from their usual activities. Make sure that they eat nutritious meals, get plenty of exercise, and the adequate amount of sleep necessary for their age.

First-Aid Kit – Keep a first-aid kit on hand that includes children’s pain medication, antiseptic cream, insect repellent, hand sanitizer or antibacterial wipes, a cold pack and bandages. Keep the acronym, R.I.C.E in mind in the case of an injury – Rest, apply Ice and Compression, and keep the injured area Elevated.

Sunscreen – Make sure that your child applies a water-resistant sunscreen that protects against UVA and UVB and is at least SPF 30. It should be reapplied every two hours and, as needed, when swimming.

Dehydration – Hot weather and strenuous activity can dehydrate children and cause heat-related illnesses.  Always keep water or sports drinks with electrolytes handy and remind kids to drink plenty of fluids throughout the day.

Bug Safety – Avoid areas where insects tend to congregate. Have children wear long-sleeved shirts and pants, as well as socks to prevent bites. Use insect repellents that contain DEET on children over two months old in order to prevent insect-related diseases.

Playgrounds – Before your child starts to play, make sure the equipment works correctly, if it burns to the touch, or has any loose or unsecured ropes. Never leave children unsupervised.

Pool Safety – Teach your child how to swim as soon as it is recommended. Regardless of a child’s swimming capabilities, never leave them alone or unsupervised, near the pool area. Keep floating devices and a portable phone nearby.

Boating Safety – Children should wear life jackets at all times when on boats, docks, or near bodies of water. Make sure that they are the right size for your child and are fastened properly.

Open Waters – Do not let your child swim in canals or fast-moving waters. Do not let them dive into water unless you have checked it for depth, objects and safety. Never leave your child unsupervised, it is best that they swim only when there is a lifeguard on duty.

Summer Travel – If you are traveling, especially internationally, visit your child’s pediatrician to see if any vaccinations, flu shots, medications, or special precautions are needed for the area that you are traveling to.

Posted by lavandosky